The Malaysian SLE Association

What is SLE?

Systemic lupus erythematosus (SLE), or usually called lupus for short, is one of the disorders of the immune system where the immune system turns against parts of the body it is supposed to protect. It can affect many parts of the body, such as the joints, skin, kidneys, heart, lungs, blood vessels, and brain. Systemic lupus erythematosus (SLE) is the one that most people refer to when they say "lupus". The word "systemic" means the disease can affect many parts of the body. Who Gets SLE?

  • 10% of men and children
  • 90% of women

SLE in women commonly begins in the childbearing years.

What Causes SLE?

SLE is a complex disorder, and its cause is unknown. It is likely that a combination of genetic, environmental, and possibly hormonal factors work together to cause SLE.

What are the Symptoms?

Each SLE patient has slightly different symptoms. Some of the most common symptoms include painful or swollen joints, unexplained fever, and extreme fatigue. A characteris¬tic red skin rash—the "butterfly" rash—may appear across the nose and cheeks. Other symptoms include chest pain, unusual hair loss, anaemia, mouth ulcers, headaches, dizziness, depression, confusion, or seizures.

If you are showing some or all of the symptoms listed here, visit your doctor as soon as possible for a proper diagnosis.

The Malaysian SLE Association

The association's main objectives are:

  • To increase awareness of SLE, its symptoms, diagnosis, and treatment among members of the medical profession and the public so as to contribute towards an earlier diagnosis and proper management of this disease in Malaysia.
  • To educate patients and their family members on the various aspects of SLE and to provide counselling services to enable them to better understand and cope with the challenges of living with this chronic illness.
  • To initiate and nurture the formation of SLE support groups in Malaysia thereby strengthening the support systems for SLE patients and their family members in the country. Participation in support groups can provide emotional help, boost self-esteem and morale, and improve coping skills.

PSLEM's work is mainly funded by corporate donors and individual well-wishers.

PSLEM is recognized by the government as a charity body and donations to the association are tax exempted.

Where will my donations go?

  1. The Lupus Resource & Counselling Centre in Petaling Jaya: PSLEM operates a Helpline for SLE patients and members of the public all over Malaysia.
  2. SLE Fund: PSLEM provides financial assistance for needy patients who have to undergo joint replacement and cataract operations due to the side effects of their corticosteroid treatment. The SLE Fund subsidises up to 90% of the cost of the patient's prosthesis or lens implant.
  3. SLE Research Facility. The research facility will be located at the premises of Persatuan SLE Malaysia.

It's aims are to:

  1. Stimulate research activities in lupus and lupus-relative topics
  2. Provide financial grants for research into the causes, treatment and prevention of lupus
  3. Provide an avenue for the exchange of research ideas in lupus
  4. To network with other governmental and non-governmental bodies in aiding lupus research at home and abroad.

Persatuan SLE Malaysia
Address: 3rd Floor, Bangunan Sultan Salhuddin Abdul Aziz Shah, 16, Jalan Utara, 46200 Petaling Jaya, Selangor.

Tel 1: 03-7957 7627
Tel 2: 03-7957 0407

Facebook: Persatuan SLE Malaysia

HELPLINE No. 603-7957 7672
(Available during office Hours: 9.30am to 5.30pm, Mondays to Fridays)